Experience of Palliative Care Project

A team of researchers in British Columbia and Nova Scotia are conducting a study that seeks to improve the quality of life for patients and their caregivers who have either used palliative care services or had challenges in doing so.

The researchers invite patient, families, and/or caregivers who have experience(s) of accessing emergency services in British Columbia (BC), while also receiving palliative care services, to take part in either an interview over the telephone or an in-person group discussion, regarding ways to improve access to in-home support in symptom crises (or after hours).

Who can take part in the study?
Any British Columbia patient or family/caregiver of a patient who is receiving/has received palliative care and reached out for help in a medical emergency (e.g. by calling for health services such as 911, or the BC NurseLine, or going to the hospital emergency department) within the last two years.

How to participate in the study
If you are interested in taking part in the study, please submit your contact information below. Please also indicate whether you would like to take part in an interview over the telephone or a small group discussion (deliberative dialogue).







Who do you contact if you would like more information about this study?
Connie Kekwaletswe at 604-822-0867 or connie22@mail.ubc.ca.

Who is conducting this study?
A team of researchers in British Columbia and Nova Scotia:

British Columbia team:
Dr. Jennifer Kryworuchko: UBC; School of Nursing and Centre for Health Services & Policy Research
Dr. Sabrina Wong: UBC; School of Nursing and Centre for Health Services & Policy Research
Dr. Kimberlyn McGrail: UBC; School of Population and Public Health and Centre for Health Services & Policy Research
Sandra Peterson: UBC; Centre for Health Services & Policy Research
Dr. Doris Barwich: UBC; Department of Medicine and BC Centre for Palliative Care
Dr. Dick William: UBC; Emergency Medicine
Dr. John Tallon: BC Emergency Health Services and UBC Department of Emergency Medicine
Peter Thorpe, BC Emergency Health Services
Julie Wei: UBC; School of Population and Public Health

Nova Scotia team:
Dr. Alexandra Carter: Dalhousie University/Nova Scotia Health Authority; Department of Emergency Medicine
Dr. Fred Burge: Dalhousie University (Nova Scotia); Family Medicine
Beverley Lawson: Dalhousie University (Nova Scotia); Family Medicine
Dr. Grace Warner: Dalhousie University (Nova Scotia); Occupational Therapy
Dr. Judah Goldstein: Dalhousie University (Nova Scotia); Emergency Medicine
Michelle Harrison: Nova Scotia Health Authority (Halifax)
Dr. Andrew Travers: Dalhousie University (Nova Scotia); Emergency Medicine and Provincial Medical Director, Emergency Health Services

Who is funding this study?
The study is funded by the Canadian Institutes of Health Research, the Michael Smith Health Research Foundation and Nova Scotia Emergency Health Services.

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