Experience of Palliative Care Project

A team of researchers in British Columbia and Nova Scotia are conducting a study that seeks to improve the quality of life for patients and their caregivers who have either used palliative care services or had challenges in doing so.

How to participate in the study
We are collecting anonymous stories regarding experiences of palliative care services in British Columbia or Nova Scotia. These stories are posted on a private storyboard, accessible to those interested in participating and to the research team.

Please contact Connie Kekwaletswe at 604-822-0867 or connie22@mail.ubc.ca f you would like to contribute to the storyboard. She will provide you with a password. Once you have the password, click here to view submitted stories or submit your own story.

The research team will make a summary of the main elements from the stories, such as how most people went about accessing palliative care and their experiences. The combined summary from all the stories will be used a starting point for a small group discussion to be held with caregivers of palliative patients in the coming weeks.







Who do you call if you would like more information about this study?
Connie Kekwaletswe at 604-822-0867.

Who is conducting this study?
A team of researchers in British Columbia and Nova Scotia:

British Columbia team:
Dr. Jennifer Kryworuchko: UBC; School of Nursing and Centre for Health Services & Policy Research
Dr. Sabrina Wong: UBC; School of Nursing and Centre for Health Services & Policy Research
Dr. Kimberlyn McGrail: UBC; School of Population and Public Health and Centre for Health Services & Policy Research
Sandra Peterson: UBC; Centre for Health Services & Policy Research
Dr. Doris Barwich: UBC; Department of Medicine and BC Centre for Palliative Care
Dr. Dick William: UBC; Emergency Medicine
Peter Thorpe, BC Emergency Health Services
Julie Wei: UBC; School of Population and Public Health

Nova Scotia team:
Dr. Alexandra Carter: Dalhousie University/Nova Scotia Health Authority; Department of Emergency Medicine
Dr. Fred Burge: Dalhousie University (Nova Scotia); Family Medicine
Beverley Lawson: Dalhousie University (Nova Scotia); Family Medicine
Dr. Grace Warner: Dalhousie University (Nova Scotia); Occupational Therapy
Dr. Judah Goldstein: Dalhousie University (Nova Scotia); Emergency Medicine
Michelle Harrison: Nova Scotia Health Authority (Halifax)
Dr. Andrew Travers: Dalhousie University (Nova Scotia); Emergency Medicine and Provincial Medical Director, Emergency Health Services

Who is funding this study?
The study is funded by the Canadian Institutes of Health Research, the Michael Smith Health Research Foundation and Nova Scotia Emergency Health Services.

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